Our Stories

Many people around the world live with spasticity, whether as individuals, caregivers for people with spasticity, or as healthcare professionals who provide care for people living with spasticity.

These are their stories. Some of them are stories of triumph. Some are stories of pain and frustration. All are true.

 

Chris’ Story

Chris’ Story

“The best two hours of my life at the time.” That’s how Chris Casiez described the dramatic improvements he saw with his spasticity during his screening trial with intrathecal baclofen. A positive response to a test dose of intrathecal baclofen during the screening trial is one of the first steps in determining if an individual… Read more

Jenn’s Story

Jenn’s Story

Jenn Wolff required additional surgeries because of the pump, but still chose to keep it. Writing a graduate thesis is an exhausting process for anyone; doing so on high doses of baclofen and Zanaflex while combatting relentless spasms isn’t the textbook way to make it easier. That’s the situation Jenn Wolff found herself in 2005…. Read more

Lorraine’s Story

Experience with Intrathecal Baclofen Therapy

“Neglible” would not be one of the words Lorraine Cannistra uses to describe the effort and time she has put into her baclofen pump since getting it in April 2012. Cannistra, who has cerebral palsy, held off on the surgery for as long as she could. When the maximum oral dosage of baclofen and botox… Read more

Anna’s Story

Anna’s Story

“I regained 100 percent of my independence.” Anna Gilabert, who lives in Barcelona, Spain, sustained a T5 injury in 1999. She was well on her way back to independence three months afterward when her spasticity took a dramatic turn for the worse. “My spasticity started increasing a lot and it became really very, very difficult… Read more

Richard’s Story

Experience with Spasticity Technology

Richard’s Story

Richard Holicky knew there were serious risks involved with having a baclofen pump surgically implanted, but he had also heard the “miracle” stories from recipients who said the pump had all but saved their lives by controlling their spasticity. He held out as long as he could, but as his spasms grew more and more… Read more

KT’s Story

When Spasticity Leaves Rehab with You

I’ve been living with spasticity since age 27; I survived an intracerebral hemorrhagic stroke caused by a ruptured AVM which took the use of my left side.  The AVM resided between two cortices that make up the “strips” between the right frontal and parietal lobes.  These two cortices control movement and help the body respond… Read more

Mitchell’s Story

My Stroke Led to My Career in Physical Therapy

Mitchell’s Story

After my stroke at age five, the doctors said I may never walk again; my physical therapist (PT) said “we’ll see about that.” That’s where my long road to becoming a PT began. I had my stroke back in 1987 when I was five years old. I had a benign brain tumor that was a… Read more

Robin’s Story

Road To A New Normal

Robin’s Story

On January 21, 2010, I was 34 years old when I was injured in a serious car accident with a drunk driver. I was alert and responsive at the scene of the accident but taken to St. Francis Hospital in Poughkeepsie, NY for treatment of a broken nose and finger. I remember arriving at the… Read more