In order to build a community of support for those whose lives are affected by spasticity, several patient advocacy organizations have come together to form The Spasticity Alliance.
Together, the Spasticity Alliance aims to raise awareness about spasticity, empower people living with spasticity, and serve as a resource hub for information about spasticity, condition management, and treatment.
About Association of Rehabilitation Nurses
ARN’s mission is to promote and advance professional rehabilitation nursing practice through education, advocacy, collaboration, and research to enhance the quality of life for those affected by chronic illness or physical disability.
About Brain Injury Association of America
Founded in 1980, the mission of the Brain Injury Association of America (BIAA) is to advance brain injury awareness, research, treatment, and education to improve the quality of life for all people affected by brain injury. BIAA is dedicated to increasing access to high quality care and accelerating research. With a network of state affiliates, local chapters, and support groups, BIAA provides help, hope, and healing and serves as the Voice of Brain Injury for individuals who are injured, their families, and the professionals who provide research, treatment, and services.
About Multiple Sclerosis Association of America
MSAA is a national, nonprofit organization founded in 1970. Our organization is dedicated to improving lives today through ongoing support and direct services to individuals with MS, their care partners, and family members. Programs include a Helpline with trained specialists; award-winning educational videos and publications, including MSAA’s magazine, The Motivator; safety and mobility equipment distribution; cooling accessories for heat-sensitive individuals; educational programs held across the country; a mobile app, My MS Manager; and Lending Library, among other services.
About National Stroke Association
The mission of National Stroke Association is to reduce the impact and incidence of stroke. For more than 30 years we have been a trusted source for free resources and education for the entire stroke community. We develop programs across the full continuum of stroke —prevention, acute treatment, and rehabilitation. We believe that caregivers and the survivor’s circle of support are essential to their recovery. Our programs and material are provided to the stroke community for free.
About United Cerebral Palsy
United Cerebral Palsy (UCP) was founded in 1949, when parents of children with cerebral palsy came together looking for help, answers and information. The spirit of that watershed moment has permeated UCP’s policy efforts from the organization’s inception. Our mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. With over 70 affiliates, UCP provides critical services and support to more than 176,000 people with a spectrum of disabilities in the United States each and every day. For more than 60 years, UCP has worked to ensure that people with disabilities are included in every facet of society. We strive to achieve that goal by pushing for the social, legal and technological changes that increase accessibility and independence, revolutionize care, raise standards of living and create opportunities for the nearly 60 million Americans living with disabilities today.
About United Spinal Association
United Spinal Association is the largest disability-led national non-profit organization founded by paralyzed veterans in 1946 and has since provided service programs and advocacy to improve the quality of life of those across the life span living with spinal cord injuries and disorders (SCI/D) such as multiple sclerosis, amyotrophic lateral sclerosis (ALS), post-polio syndrome and spina bifida. United Spinal represents over one million individuals with spinal cord injuries and disorders, 50 chapters, 103 rehabilitation hospital members and close to 200 support groups nationwide. Throughout its history, United Spinal Association has devoted its energies, talents and programs to improving the quality of life for these Americans and for advancing their independence. United Spinal Association is also a VA-recognized veterans service organization (VSO) serving veterans with disabilities of all kinds.
Friends of the Spasticity Alliance
American Academy of Physical Medicine • Academy of Spinal Cord Injury Professionals • Multiple Sclerosis Foundation • MS Cure Fund Inc. • University of Maryland Rehab & Orthopedics • YoungStroke, Inc. • Caregiver Action Network • U.S. Pain Foundation • National Alliance for Caregiving • Association of Rehabilitation Nurses