In order to build a community of support for those whose lives are affected by spasticity, several patient advocacy organizations have come together to form the Spasticity Alliance.
Together, the Spasticity Alliance aims to raise awareness about spasticity, empower people living with spasticity, and serve as a resource hub for information about spasticity, condition management, and treatment.
About Brain Injury Association of America
Founded in 1980, the mission of the Brain Injury Association of America (BIAA) is to advance brain injury awareness, research, treatment, and education to improve the quality of life for all people affected by brain injury. BIAA is dedicated to increasing access to high quality care and accelerating research. With a network of state affiliates, local chapters, and support groups, BIAA provides help, hope, and healing and serves as the Voice of Brain Injury for individuals who are injured, their families, and the professionals who provide research, treatment, and services.
About Multiple Sclerosis Association of America
MSAA is a national, nonprofit organization founded in 1970. Our organization is dedicated to improving lives today through ongoing support and direct services to individuals with MS, their care partners, and family members. Programs include a Helpline with trained specialists; award-winning educational videos and publications, including MSAA’s magazine, The Motivator; safety and mobility equipment distribution; cooling accessories for heat-sensitive individuals; educational programs held across the country; a mobile app, My MS Manager; and Lending Library, among other services.
About National Stroke Association
The mission of National Stroke Association is to reduce the impact and incidence of stroke. For more than 30 years we have been a trusted source for free resources and education for the entire stroke community. We develop programs across the full continuum of stroke —prevention, acute treatment, and rehabilitation. We believe that caregivers and the survivor’s circle of support are essential to their recovery. Our programs and material are provided to the stroke community for free.
About United Spinal Association
United Spinal Association is the largest disability-led national non-profit organization founded by paralyzed veterans in 1946 and has since provided service programs and advocacy to improve the quality of life of those across the life span living with spinal cord injuries and disorders (SCI/D) such as multiple sclerosis, amyotrophic lateral sclerosis (ALS), post-polio syndrome and spina bifida. United Spinal represents over one million individuals with spinal cord injuries and disorders, 50 chapters, 103 rehabilitation hospital members and close to 200 support groups nationwide. Throughout its history, United Spinal Association has devoted its energies, talents and programs to improving the quality of life for these Americans and for advancing their independence. United Spinal Association is also a VA-recognized veterans service organization (VSO) serving veterans with disabilities of all kinds.
About National Alliance for Caregiving
Established in 1996, the National Alliance for Caregiving is a non-profit coalition of national organizations focusing on advancing family caregiving through research, innovation, and advocacy. The Alliance conducts research, does policy analysis, develops national best-practice programs, and works to increase public awareness of family caregiving issues.
About Multiple Sclerosis Foundation: MS Focus
The Multiple Sclerosis Foundation, known in the MS community as MS Focus, is a nonprofit organization focused on providing free services that address the critical needs of people with MS and their families, helping them maintain the best quality of life.
The symptoms of MS are unpredictable and may increase in severity over time. This presents physical, emotional, and financial challenges families must face. MS Focus is here to provide the support, education, and assistance needed to adapt to these challenging circumstances. Our primary focus is on providing individuals with MS the help they need to maintain their health and well-being, to continue to be productive and independent, and to keep a roof over their heads and a safe environment in their home. We do so with empathy, resourcefulness, and conscientious care.
About Academy of Spinal Cord Injury Professionals
The Academy of Spinal Cord Injury Professionals (ASCIP) is a not for profit interdisciplinary organization dedicated to optimizing the health of individuals with SCI/D, through education, professional development and research. In 2003 four professional organizations: American Paraplegia Society (APS), Association of Spinal Cord Injury Nurses (ASCIN), Psychologists, Social Workers & Counselors (PSWC) and Therapy Leadership Council (TLC) combined to create ASCIP ”Many Minds…One Vision.”
Friends of the Spasticity Alliance
American Academy of Physical Medicine • MS Cure Fund Inc. • University of Maryland Rehab & Orthopedics • YoungStroke, Inc. • Caregiver Action Network • U.S. Pain Foundation • Association of Rehabilitation Nurses • United Cerebral Palsy